Back again, with more stomach questions...I had a colon resection on
9/30/2003 due to endometriosis causing a blockage in my colon. (I also had both ovaries removed (one
covered in endo, plus stage 1A ovarian cancer was found in that one ovary), plus part of my
bladder (it had endo on it), plus my appendix (endo-covered), plus the omentum (looking for
cancer spread), plus some lymph nodes (same). No cancer spread was found. I will be consulting
with an oncologist on whether chemo's needed.)
I was happy after the surgery to learn they'd done the colon resection, because I figured it
explained all my intestinal blockage symptoms, and I figured now I could finally get better.
Unfortunately, I still have the symptoms -- nausea, pain, inability to eat anything (soft bland
stuff -- I haven't tried anything else), nothing passing through my intestines except gas unless I
take 4-8 Dulcolax tablets to turn things to diarrhea. Continuing weight loss (down 40 lbs so far and
dropping), obviously, because I can't eat. I haven't been vomiting but I think that's mainly because
I'm not eating. The times I've tried eating soft bland stuff, I have to followup a couple of hours
later with anti-nausea meds (Ativan). When I avoid food and stick to apple juice, that causes its
own problems -- lightheadedness, fatigue, hardly being able to walk -- just not getting enough
nutrition. And I'm worried because I don't know how I'll be able to handle chemo (if they recommend
it) given the current state of affairs.
I have an appointment with a gastroenterologist on Tuesday, but I'd really appreciate any info
anyone here can offer. I'm really hoping these aren't normal post-colon-resection symptoms -- it
shouldn't seal up again immediately should it? Even in the hospital I felt like something was still
wrong there; I couldn't eat while in the hospital either (at the end of the 2 week stay -- didn't
eat for the first few days of course, plus then did clear liquids for a week), nor could I pass
anything except gas. I could understand pain on going, but not being able to go at all seems wrong.
Are there any tests in particular I should request that would be helpful? I'm sure they'll want to
do x-rays; my concern is that x-rays never showed my endo blocking the bowel, so I know they don't
show everything. Would a barium enema show everything? Colonoscopy -- how soon can they do something
like that post-op? Though that wouldn't show things going on outside of the bowel, so I don't even
know how helpful that would be. A flex sigmoidoscopy in mid Sept missed the endo blockage, too, so I
don't expect that would be useful...Still being incapacitated, I'd even be willing to go back under
the knife again (it was a laparotomy, not a laparoscopy) to try to find out what's wrong.
Thanks...
----
Lee Newman, [email hidden] | Patience, n.: Research Programmer | A minor form of despair
Digital Library Technologies, Penn. State | disguised as a virtue.
| -- Ambrose Bierce