General fitness, health and nutrition · Public discussion

colon resection problems?

Started by Lee Newman · · Last activity · 2 posts · 1,745 views

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General fitness, health and nutrition
Published
29 December 2003
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29 December 2003
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Lee Newman
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  1. Back again, with more stomach questions...I had a colon resection on
    9/30/2003 due to endometriosis causing a blockage in my colon. (I also had both ovaries removed (one
    covered in endo, plus stage 1A ovarian cancer was found in that one ovary), plus part of my
    bladder (it had endo on it), plus my appendix (endo-covered), plus the omentum (looking for
    cancer spread), plus some lymph nodes (same). No cancer spread was found. I will be consulting
    with an oncologist on whether chemo's needed.)

    I was happy after the surgery to learn they'd done the colon resection, because I figured it
    explained all my intestinal blockage symptoms, and I figured now I could finally get better.
    Unfortunately, I still have the symptoms -- nausea, pain, inability to eat anything (soft bland
    stuff -- I haven't tried anything else), nothing passing through my intestines except gas unless I
    take 4-8 Dulcolax tablets to turn things to diarrhea. Continuing weight loss (down 40 lbs so far and
    dropping), obviously, because I can't eat. I haven't been vomiting but I think that's mainly because
    I'm not eating. The times I've tried eating soft bland stuff, I have to followup a couple of hours
    later with anti-nausea meds (Ativan). When I avoid food and stick to apple juice, that causes its
    own problems -- lightheadedness, fatigue, hardly being able to walk -- just not getting enough
    nutrition. And I'm worried because I don't know how I'll be able to handle chemo (if they recommend
    it) given the current state of affairs.

    I have an appointment with a gastroenterologist on Tuesday, but I'd really appreciate any info
    anyone here can offer. I'm really hoping these aren't normal post-colon-resection symptoms -- it
    shouldn't seal up again immediately should it? Even in the hospital I felt like something was still
    wrong there; I couldn't eat while in the hospital either (at the end of the 2 week stay -- didn't
    eat for the first few days of course, plus then did clear liquids for a week), nor could I pass
    anything except gas. I could understand pain on going, but not being able to go at all seems wrong.
    Are there any tests in particular I should request that would be helpful? I'm sure they'll want to
    do x-rays; my concern is that x-rays never showed my endo blocking the bowel, so I know they don't
    show everything. Would a barium enema show everything? Colonoscopy -- how soon can they do something
    like that post-op? Though that wouldn't show things going on outside of the bowel, so I don't even
    know how helpful that would be. A flex sigmoidoscopy in mid Sept missed the endo blockage, too, so I
    don't expect that would be useful...Still being incapacitated, I'd even be willing to go back under
    the knife again (it was a laparotomy, not a laparoscopy) to try to find out what's wrong.

    Thanks...

    ----
    Lee Newman, [email hidden] | Patience, n.: Research Programmer | A minor form of despair
    Digital Library Technologies, Penn. State | disguised as a virtue.
    | -- Ambrose Bierce

  2. Hi Lee, I cannot comment on most of your post because it seems that there were many things going on
    in there, but I would certainly contact my doc ASAP because you shouldn't be having the same
    problems that you had before the surgery. Usually when I have had surgery they won't let me go home
    until I have eaten solid food, not vomited and have a BM. I can comment on the lightheadedness and
    fatigue. You need to make sure you get some electrolytes into your system. One of the sources for
    this is in the baby food department of your supermarket, it is pedialyte. There is also a company
    making something called Vitamin Water and some of those have lytes in them also. I survived for over
    6 months on a liquid diet and I didn't feel great, but I did get plenty of electrolytes which kept
    me from passing out. Please get those lytes into your system, you will feel better. Connie

    Lee Newman said:

    Back again, with more stomach questions...I had a colon resection on
    9/30/2003 due to endometriosis causing a blockage in my colon. (I also had both ovaries removed
    (one covered in endo, plus stage 1A ovarian cancer was found in that one ovary), plus part of
    my bladder (it had endo on it), plus my appendix (endo-covered), plus the omentum (looking
    for cancer spread), plus some lymph nodes (same). No cancer spread was found. I will be
    consulting with an oncologist on whether chemo's needed.)

    I was happy after the surgery to learn they'd done the colon resection, because I figured it
    explained all my intestinal blockage symptoms, and I figured now I could finally get better.
    Unfortunately, I still have the symptoms -- nausea, pain, inability to eat anything (soft bland
    stuff -- I haven't tried anything else), nothing passing through my intestines except gas unless I
    take 4-8 Dulcolax tablets to turn things to diarrhea. Continuing weight loss (down 40 lbs so far
    and dropping), obviously, because I can't eat. I haven't been vomiting but I think that's mainly
    because I'm not eating. The times I've tried eating soft bland stuff, I have to followup a couple
    of hours later with anti-nausea meds (Ativan). When I avoid food and stick to apple juice, that
    causes its own problems -- lightheadedness, fatigue, hardly being able to walk -- just not getting
    enough nutrition. And I'm worried because I don't know how I'll be able to handle chemo (if they
    recommend it) given the current state of affairs.

    I have an appointment with a gastroenterologist on Tuesday, but I'd really appreciate any info
    anyone here can offer. I'm really hoping these aren't normal post-colon-resection symptoms -- it
    shouldn't seal up again immediately should it? Even in the hospital I felt like something was
    still wrong there; I couldn't eat while in the hospital either (at the end of the 2 week stay --
    didn't eat for the first few days of course, plus then did clear liquids for a week), nor could I
    pass anything except gas. I could understand pain on going, but not being able to go at all seems
    wrong. Are there any tests in particular I should request that would be helpful? I'm sure they'll
    want to do x-rays; my concern is that x-rays never showed my endo blocking the bowel, so I know
    they don't show everything. Would a barium enema show everything? Colonoscopy -- how soon can they
    do something like that post-op? Though that wouldn't show things going on outside of the bowel, so
    I don't even know how helpful that would be. A flex sigmoidoscopy in mid Sept missed the endo
    blockage, too, so I don't expect that would be useful...Still being incapacitated, I'd even be
    willing to go back under the knife again (it was a laparotomy, not a laparoscopy) to try to find
    out what's wrong.

    Thanks...

    ----
    Lee Newman, [email hidden] | Patience, n.: Research Programmer | A minor form of despair
    Digital Library Technologies, Penn. State | disguised as a virtue.
    | -- Ambrose Bierce

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