My heart she keeps a beating (Atrial Fribulation)



MikeyOz

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Aug 12, 2003
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Go Back Now (If bored easily!)

so about a month ago got the bad news from the specialist, tablets for another 3 months, to say I was disappointed was a complete under-statement, had about 2 days of depression and muttering to myself and thinking long and hard about the next decision I made, but no matter how I tried to explain my situation to the specialist he seemed to be on a completely different World.

who knows my heart/body better, ME or some guy who looks at me with some instruments and decides I should help towards the mass production of medication to provide profits to the drug companies (I think I may have watched the constant garderner on the plane when I travelled) so I was on a conscience trip, but surely, its me I know how I feel, I have been watching it, pushing it, maintaining it and occasionaly abusing (WITH Alcohol) it for the last Ive lost count years, its me, so I took a radical step, I decided to keep taking the tablets :) on my terms, so Im still taking them, just not quite the quantity I should be, I had read a lot of postings and even some books about the issue and its amazing the number of people that take matters into there own hands.

So I decided ok, I can do this, but I have to ease it back in so the last month or so has been a slow month of building back up and limiting the number of sessions where I push my heart rate to high, so being very careful about it all.

The cycling is progressing quite well, I am very happy, starting to push myself harder and harder and the good news is my heart recovers quite quickly, does not stay elevated and I dont feel any side effects and im not at my level I was before, but I am quickly getting back there.

The Running is coming, but a bit slower as I expected, a good example was about 2 weeks ago, started running and my heart blew up on me, panic, stress, shear scare-sh*tless ness rushed over me, so I stopped took a few deep breaths and started walking, heart rate gradually came down, stablised to where it should be and I went from there, gradually managed to push the heart rate higher and higher from start to finish, but never higher than 150, so for me and running, that was pretty ok, turned out to be a very positive run, so made me realise, I just had to take it slowly, and the last few weeks my long runs have been very enjoyable, look at the scenery a bit more and enjoy the fact I am out and taking it all in, after all, I have plenty of time to push myself harder later on this year :)

Swimming, well lets just say Im having a break from it, my brother starts training with me proper so we are joining a swim squad, going to do it properly! *gasp* *shock* *horror* so my swimming will come back.

I have limited my exercise to 1 session a day, for the last month, with a rest day per week, soon I will start introducing a 2nd session every 2nd day and then from there, up to 2 sessions a day again, with a rest day, I am finding the rest day more and more important, I dont so much despise the rest day now, I really enjoy it, forget about exercise and then Tuesday morning, im off.

so I have had a bit of a mental battle am I being stupid, doing the wrong thing, but I think I have been very careful about it, I get plenty of rest, I make sure I eat regularly, fairly healthy, try to keep the fluids up, enjoy each session and make sure I get enough sleep and the support from my wife, has been amazing, without which I would probably being lying on a sofa somewhere, I think 1 morning she literally kicked me out of the house and said "dont come back for 2 hours, no wait, 1 hour, dont go to silly to soon" :)
 
Good on you MikeyOz,

hang in there, keep the faith - do what you know is right.

T
 
MikeyOz wrote:
> Go Back Now (If bored easily!)
>
> so about a month ago got the bad news from the specialist, tablets for
> another 3 months, to say I was disappointed was a complete
> under-statement, had about 2 days of depression and muttering to myself
> and thinking long and hard about the next decision I made, but no matter
> how I tried to explain my situation to the specialist he seemed to be on
> a completely different World.
>
> who knows my heart/body better, ME or some guy who looks at me with
> some instruments and decides I should help towards the mass production
> of medication to provide profits to the drug companies (I think I may
> have watched the constant garderner on the plane when I travelled) so I
> was on a conscience trip, but surely, its me I know how I feel, I have
> been watching it, pushing it, maintaining it and occasionaly abusing
> (WITH Alcohol) it for the last Ive lost count years, its me, so I took
> a radical step, I decided to keep taking the tablets :) on my terms, so
> Im still taking them, just not quite the quantity I should be, I had
> read a lot of postings and even some books about the issue and its
> amazing the number of people that take matters into there own hands.


That's a tough call, one I'm glad I don't have to make. I wouldn't say
I'm anti-medication but I agree with your general gist (I think) that
all doctors can grasp is drugs drugs and more drugs. In your shoes I'd
probably do the same which would be kind of tough. My wife's the
daughter of two pharmacists!

Jamie's School Dinners really did it for me; all these kids with ADD
problems which `needed' medication. Jamie changed their diet so it
wasn't full of preservatives, additives, fast sugars etc. and within a
week the problem children turned in to delightful little darlings.


Modern medicine just isn't holistic enough IM(very uneducated)O

Good luck Mikey.
--
Cheers | ~~ __@
Euan | ~~ _-\<,
Melbourne, Australia | ~ (*)/ (*)
 
I have been on medication for four years now for Atrial Flutter and
Atrial Fibrilation (I'm 47).

I'm on my second type of medication, but things are well controlled at
the moment.
I find that if I limit my coffee intake to two cups a day and alchohol
to 1 - 1.5 glass of wine every couple of days I'm OK.

I started daily commuting (drive-ride) a couple of months ago and my
increase in fitness (and weight loss) has only helped my condition.

My advise is to establish what is a good dose for you right now and the
best times of the day to take your medication, exercise sensibly and
manage the consumption of stimulants that you know are going to set
your heart off.
 
PHP:
MikeyOz said:
Go Back Now (If bored easily!)

who knows my heart/body better, ME or some guy who looks at me with some instruments and decides I should help towards the mass production of medication to provide profits to the drug companies
PHP:

I agree with all other sentiments posted so far. Perhaps as a "safety net", consider finding another specialist for that fabled second opinion? Reading between the lines, it seems there is a lack of "raport" with the current specialist. Confidence in the advice you're getting is important.
 
MikeyOz said:
Go Back Now (If bored easily!)

so about a month ago got the bad news from the specialist, tablets for another 3 months, to say I was disappointed was a complete under-statement, had about 2 days of depression and muttering to myself and thinking long and hard about the next decision I made, but no matter how I tried to explain my situation to the specialist he seemed to be on a completely different World.

who knows my heart/body better, ME or some guy who looks at me with some instruments and decides I should help towards the mass production of medication to provide profits to the drug companies

Snip

A bit harsh but I cant blame you, having been down the same AF street. Just accept it as fact that its the medication that is probably holding off a re occourance.

You have be worse and are now improving.

My situation is that I will be on AF medication forever. I know my body and I know that if I miss it for 3 days I start getting very fluttery and have episodes of being "out" for about 10 minutes and "in" for 20 until I get the meds back inside. Dont blame the medication for the AF problem. Its so easy to be negative and unfortunately ppl often find it easy to agree with negative statements even when they have no idea of the issue.

Are you still on Warfrin?
I think you were also taking Digoxin and Sotolol. U need to work out when to take them in relation to your exercise sessions. Keep notes or take advice from Peter H. There can be big diff in performance depending on time between pills and exercise. I take mine first thing in morning - Except on Sunday mornings ( Tvl BR ) when I take it as soon as I get back, IF I am not going to have any dairy food for 2 hours or hold off longer if I am going to fill up on milk based smoothies etc. For the normal evening training ride there is no problem with going hard as the meds were taken 12 hours ago and the dosage spike has passed. I personally feel a "drag" from the meds in the 4-8 hour period after taking them. No accelerations and crappy climbing. We are all different.

Whatever you change with the prescribed dosage of medication keep it noted and tell the doc what you have done. If he doesnt know and he detects a worsening he could be sending you off for un-necessary tests or doubling the meds when all that is needed is to follow the original directions.

Sounds to me like you are going great and have made a big improvement since you first told us of your AF.
Also, your wife, like mine , is being a great supporter and being more help than you probably realise. Sure she would appreciate hugs, a few words like "thanks for putting up with me", and a fancy restaurant meal .


Cheers
Hugh