General fitness, health and nutrition · Public discussion

Juvenile Rheumatoid Arthritis Advice

Started by Shellie · · Last activity · 4 posts · 280 views

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General fitness, health and nutrition
Published
5 September 2003
Last activity
6 September 2003
Original author
Shellie
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  1. Does anyone have any first hand experience and/or advice on
    alternative pain reducing therapies, such as herbs, creams or magetic
    therapies to help for my 11 year old girl with this horrible disease
    that is effecting both her feet. She is finding walking extremely
    painful and at times impossible. Please help. Thanks. Shell

  2. Find the allergies. Usually suspect wheat first. Try it for 2 weeks.

    Don't listen to Doctors about food allergies. They have no training.

    Skin scratch tests will tell you what you skin is allergic to, not your
    stomache or bowels. It's only a money maker for the Doctors taking advantage
    of the desparate.

    "Shellie" <[email hidden]> wrote in message
    news:[email hidden]...

    Quoted message said:

    Does anyone have any first hand experience and/or advice on
    alternative pain reducing therapies, such as herbs, creams or magetic
    therapies to help for my 11 year old girl with this horrible disease
    that is effecting both her feet. She is finding walking extremely
    painful and at times impossible. Please help. Thanks. Shell

  3. Quoted message said:

    Subject: Re: Juvenile Rheumatoid Arthritis Advice

    Quoted message said:

    "Shellie" <[email hidden]> wrote in message
    news:[email hidden]...

    Quoted message said:

    Does anyone have any first hand experience and/or advice on
    alternative pain reducing therapies, such as herbs, creams or magetic
    therapies to help for my 11 year old girl with this horrible disease
    that is effecting both her feet. She is finding walking extremely
    painful and at times impossible. Please help. Thanks. Shell

    Below you will find a medical study out of Baylor.
    In this study they have found the iron 'they' prescribe to those with JRA has
    been going directly to their joints and causing destruction.
    They state they need to do a followup study to see if .. diet .. does the same
    thing .. destruction of joints.

    Reason leaves us in this position. Iron from supplements cause destruction ..
    iron from meat therefore .. since it is MUCH more highly absorbable .. would be
    something I might watch very closely in my child ..

    Low iron diet .. sans meat ..

    Who loves ya.
    Tom

    Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com
    Man Is A Herbivore! http://pages.ivillage.com/ironjustice/manisaherbivore
    DEAD PEOPLE WALKING http://pages.ivillage.com/ironjustice/deadpeoplewalking

  4. Quoted message said:

    Subject: Re: Juvenile Rheumatoid Arthritis Advice
    From: [email hidden] (doe)
    Date: 9/6/2003 11:16 AM Mountain Daylight Time
    Message-id: <[email hidden]>

    Quoted message said:

    Subject: Re: Juvenile Rheumatoid Arthritis Advice

    Quoted message said:

    "Shellie" <[email hidden]> wrote in message
    news:[email hidden]...

    Quoted message said:

    Does anyone have any first hand experience and/or advice on
    alternative pain reducing therapies, such as herbs, creams or magetic
    therapies to help for my 11 year old girl with this horrible disease
    that is effecting both her feet. She is finding walking extremely
    painful and at times impossible. Please help. Thanks. Shell

    Below you will find a medical study out of Baylor.
    In this study they have found the iron 'they' prescribe to those with JRA has
    been going directly to their joints and causing destruction.
    They state they need to do a followup study to see if .. diet .. does the
    same
    thing .. destruction of joints.

    Reason leaves us in this position. Iron from supplements cause destruction ..
    iron from meat therefore .. since it is MUCH more highly absorbable .. would
    be
    something I might watch very closely in my child ..

    Low iron diet .. sans meat ..

    EXPERIMENTAL BIOLOGY UPDATE: Arthritic kids' iron supplements may hasten joint
    deterioration

    By Diana Swift

    WWASHINGTON, D.C. - The iron supplements that many arthritic children take to
    combat concomitant anemia may be hastening the deterioration of their joints,
    Houston researchers say.

    Led by biologist Roman Shypailo of the Children's Nutrition Research Centre at
    Baylor College of Medicine, a Texas team looked at eight children being treated
    for juvenile rheumatoid arthritis. The patients, aged five to 15 years,
    received an intravenous radioactive tracer dose of iron (0.03 microsievert).
    Iron activity in affected joints was monitored on a position/energy-sensitive
    gamma counter, while a second machine monitored whole-body iron retention. Iron
    deposition was measured two hours post-infusion and again at days seven, 14, 28
    and 56.

    Anemic
    "We found that iron excessively accumulates in arthritic joints and probably
    contributes to the chronic damage," said Shypailo. "That puts you between a
    rock and a hard place because many of these arthritic kids are anemic and need
    iron supplements, which may worsen the disease."

    The study found a high level of agreement between the joint data and the
    whole-body data, with a greater than 90% retention rate of the infused iron
    both in joints and systemically. Furthermore, six of eight patients showed
    increased uptake at the affected joints: 165% over the first 30 days compared
    with initial uptake at two hours.

    The next step, he says, is to see if there is excessive deposition of dietary
    iron in arthritic joints.

    --------------------------------------------------------------------------
    ------

    IRON DEPOSITION IN THE JOINTS OF CHILDREN WITH JUVENILE RHEUMATOID ARTHRITIS

    Author(s):
    SHYPAILO ROMAN J
    ELLIS KENNETH J
    PEREZ MARIA
    ABRAMS STEVEN A

    Interpretive Summary:
    We wanted to develop an accurate and noninvasive way of
    determining the amount of iron deposited in the joints of
    patients with juvenile rheumatoid arthritis. Children with JRA
    often develop excess iron in their joints, so doctors need a
    way of monitoring the iron level, particularly when prescribing
    iron supplements for the common problem of anemia. However, the
    only method currently available is to take a biopsy. We adapted
    a machine called a gamma counter to measure the iron in eight
    patients' joints after giving them an iron isotope by vein.
    Then we compared the results with the total amount of iron in
    their bodies, measured by a whole-body counter. We found that
    we had developed an accurate new way of measuring iron in these
    patients' joints. We also found that six of the eight subjects
    had excess uptake of the iron isotope in their joints. That
    provided a signal that a preponderance of JRA patients are
    prone to have this problem, and clinicians should take special
    care to monitor them for it. Moreover, this is the first time a
    noninvasive way of performing this measurement has been
    available.

    Keywords:
    energy reproduction growth body composition women infants
    children water potassium bioelectrical impedance conductance
    bromide space lactating iron adipose tissue lipid motabolism
    beta-adrenergic receptor cell culture neutron activation
    nitrogen carbon calcium sodium chlorine phosphorus hormonal
    changes differentiation adipocyte hnrim021125

    Contact:
    USDA/ARS CHILDREN'S NUTR
    1100 BATES ST.
    HOUSTON
    TX 77030
    FAX: (713)798-7130
    Email: [email hidden]

    Approved Date: 1999-01-07
    ______________________________________________________________________

    TEKTRAN
    United States Department of Agriculture
    Agricultural Research Service

    Updated: 1999-01-16

    Who loves ya.
    Tom

    Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com
    Man Is A Herbivore! http://pages.ivillage.com/ironjustice/manisaherbivore
    DEAD PEOPLE WALKING http://pages.ivillage.com/ironjustice/deadpeoplewalking

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