Any cures for CFS/ME/IBS - esp. AFTER ALL ELSE HAS FAILED?!

Try eating less and exercising more.

--
Most people are dumb as bricks; some people are dumber than that. -- MFW

"ship" <[email hidden]> wrote in message
news:[email hidden]...

Quoted message said:

Any cures for CFS/ME/IBS - esp. AFTER ALL ELSE HAS FAILED?!

Hi

I have been stalked by fatique (CFS/ME) for about 20 years.
I have tried almost everything you can think of!

I would love to hear from anyone else who has tried LOTS OF THINGS, and
who has finally found something that has ACTUALLY WORKED!

More to my background

Symptoms
- Fatique - mainly mental fatique. Physically I am fairly fit -I
bicycle about 30+30 minutes per day. I am 45, male, 6ft and about 12
stone. I *look* reasonably healthy. I very seldom get any passing
diseases like 'flu. But I spend much of my time feeling exhausted, with
poor memory. I have an irritable bowel (fowl smelling and frequently
somewhat soft)
I suspect candida and have tried (and am recently retrying again)
various anti-fungal herbs etc.
The strange thing is that in the medium term absolutely *nothing* seems
to make any difference whatso ever way.

Over the years I have tried homeopathy (about 5 different
practitioners), and all sorts of "weird" stuff. In desperation I have
even tried counselling and psychotherapy.

- Medics cant find ANYTHING clinically wrong with me.

An alt med practitioner diagnosed reactive hypoglycemia - and certainly
eating slow-burn carbohydrates has significantly helped me. He also
gave me various thyroid support things but that didnt seem to make ANY
difference.

And still I feel fatigue.

I also have fungus in the feet, groin and sometimes on my chest and
back that keeps recurring. I got my GP to give me some anti fungal
pills. I also have medium sized "floaters" in my eyes (a sign of
Candida, no?). And have Central Serous Retinopathy. But although it has
reduced the fungal discolouring in my toenails even after 3 months I
still feel FATIGUED.

About 15 years ago I thought it was all down to food sensitivities and
experimented extensively on exclusion diets. However this didnt help. I
gave up wheat, dairy, alchol, caffeine, etc for many months. In the
short run it certainly made a slight difference, but in the longer run
all I can honestly say the it almost certainly made me MUCH WORSE.

Now in a fit of dispare I am trying multiple, high dose, anti-fungal
herbs ALL AT ONCE! I have been on the following for about 1 week now.
(with meals)
- Garlic - "max strength" x2/day
- Milk Thistle - 175mg x3/day - from Good 'n Natural
- Coenzyme Q10 - 60mg x 3/day - from Holland & Barrett
- Dida - various herbs x3/day - from New Nordic
(incl Thyme, Caramon,oregano etc)
- Pau d'Arco - 1000mg x3/day - from Good n Natural
- Capryllic Acid - 350mg x3/day from Holland & Barrett
- Aloe Vera tablets (Aloe Barbadensis Miller) - Pills of 100mg,
equivalent to 20ml of fresh Aloe Vera } x3 per day. - from Holland &
Barrett

I am also taking:
- a large teaspoon of Psyllium (sp) powder in 2 glasses of water last
thing & first thing in the morning.
- And I am eating 2 liquorish root pills about 3 times/day
before meals, when I remember.

I am aware that some of these doses are rather irresponsibly high and I
was hoping all this would have at least SOME effect, but no. Nothing.
NO EFFECT either way!

So... maybe I dont have Candida after all??

==> Any thoughts?!

I particularly would like to hear from anyone who has
cured ME/CFS with some "miracle" cure HAVING TRIED EVERYTHING ELSE.

With thanks

Ship
Shiperton Henethe

I don't have any advice for CFS but probiotics are supposed to help with
fungus/candida.

ship said:

Any cures for CFS/ME/IBS - esp. AFTER ALL ELSE HAS FAILED?!

Hi

I have been stalked by fatique (CFS/ME) for about 20 years.
I have tried almost everything you can think of!

I would love to hear from anyone else who has tried LOTS OF THINGS, and
who has finally found something that has ACTUALLY WORKED!

More to my background

Symptoms
- Fatique - mainly mental fatique. Physically I am fairly fit -I
bicycle about 30+30 minutes per day. I am 45, male, 6ft and about 12
stone. I *look* reasonably healthy. I very seldom get any passing
diseases like 'flu. But I spend much of my time feeling exhausted, with
poor memory. I have an irritable bowel (fowl smelling and frequently
somewhat soft)
I suspect candida and have tried (and am recently retrying again)
various anti-fungal herbs etc.
The strange thing is that in the medium term absolutely *nothing* seems
to make any difference whatso ever way.

Over the years I have tried homeopathy (about 5 different
practitioners), and all sorts of "weird" stuff. In desperation I have
even tried counselling and psychotherapy.

- Medics cant find ANYTHING clinically wrong with me.

An alt med practitioner diagnosed reactive hypoglycemia - and certainly
eating slow-burn carbohydrates has significantly helped me. He also
gave me various thyroid support things but that didnt seem to make ANY
difference.

And still I feel fatigue.

I also have fungus in the feet, groin and sometimes on my chest and
back that keeps recurring. I got my GP to give me some anti fungal
pills. I also have medium sized "floaters" in my eyes (a sign of
Candida, no?). And have Central Serous Retinopathy. But although it has
reduced the fungal discolouring in my toenails even after 3 months I
still feel FATIGUED.

About 15 years ago I thought it was all down to food sensitivities and
experimented extensively on exclusion diets. However this didnt help. I
gave up wheat, dairy, alchol, caffeine, etc for many months. In the
short run it certainly made a slight difference, but in the longer run
all I can honestly say the it almost certainly made me MUCH WORSE.

Now in a fit of dispare I am trying multiple, high dose, anti-fungal
herbs ALL AT ONCE! I have been on the following for about 1 week now.
(with meals)
- Garlic - "max strength" x2/day
- Milk Thistle - 175mg x3/day - from Good 'n Natural
- Coenzyme Q10 - 60mg x 3/day - from Holland & Barrett
- Dida - various herbs x3/day - from New Nordic
(incl Thyme, Caramon,oregano etc)
- Pau d'Arco - 1000mg x3/day - from Good n Natural
- Capryllic Acid - 350mg x3/day from Holland & Barrett
- Aloe Vera tablets (Aloe Barbadensis Miller) - Pills of 100mg,
equivalent to 20ml of fresh Aloe Vera } x3 per day. - from Holland &
Barrett

I am also taking:
- a large teaspoon of Psyllium (sp) powder in 2 glasses of water last
thing & first thing in the morning.
- And I am eating 2 liquorish root pills about 3 times/day
before meals, when I remember.

I am aware that some of these doses are rather irresponsibly high and I
was hoping all this would have at least SOME effect, but no. Nothing.
NO EFFECT either way!

So... maybe I dont have Candida after all??

==> Any thoughts?!

I particularly would like to hear from anyone who has
cured ME/CFS with some "miracle" cure HAVING TRIED EVERYTHING ELSE.

With thanks

Ship
Shiperton Henethe

-----
Bev

Ok, I'll bite. What IS CFS/ME/IBS?

LassChance

On Sun, 4 Sep 2005 10:41:30 -0400, [email hidden] (Lass

Chance_2) said:

Ok, I'll bite. What IS CFS/ME/IBS?

LassChance

CFS - Chronic Fatigue Syndrome
ME - Myalgic encephalitis (another name often used instead of CFS)
IBS - irritable bowel syndrome

Aramanth

ship said:

Any cures for CFS/ME/IBS - esp. AFTER ALL ELSE HAS FAILED?!

Try combining low carb plus paleo. In specific try a
very cautious rendition of the Atkin process where if
it is meantioned as a problem in a paleo book then
don't add it for the first 6+ months.

I suggest this because IBS tends to be caused by immune
reactions to grain proteins so going grain-free often
resolves it over a period of a few months, and because
the KISS approach to Atkins (Keep Is Simple Sweetie, as
in no pre-packaged foods) helps folks with CFS or
fibromyalgia symptoms.

Think meat, eggs, fresh veggies for a while then
gradually expanding into tree nuts, berries, root
veggies, fruits.

Eating little and often helps.

Eating less not sure - I dont eat that much now
But yes I could certainly cut back a bit.

Glucose levels are clearly *part* (just part!) of the problem though
and in order to be productive at work glucose needs kept up.
And this makes eating very little rather tricky.

Exercising - yes I already do quite a lot -
I bicycle about 1 hour a day...

Ship

Have tried probiotics quite extensively.

Have never noticed the slightest difference...

Ship

Chronic Fatique Syndrome / MyoEncephalitis / Irritable Bowel Disease.

All these conditions seem to be quite inter-related.
Though medics generally prefer to just deny that any of them exist and
opt for an easy life (for them!)

Diet /stress /various hormone levels/ auto-immune diseases... all these
things seem to be interwoven in the literature.

Ship
Shiperton Henethe

What is "Paleo"?

I would strongly warn anyone thinking of extreme restriction diets
to think again. In the short run they helped but they DEFINITELY made
me much worse
in the longer run. For one thing the food sensitivities appear to be a
moving target!

A strict diversified *rotational* diet can help however.

I dont do well nut, nor on too much roughage which appears to
irritate the gut lining.

Ship
Shiperton Henethe

Quoted message said:

What is "Paleo"?

Paleo is the general term for a class of elimination
systems. Doing elimination systems without the paleo
lists of what to try when means not being systematic
about your elimination systems. Paleo is part of the
word paleolithic. Paleo systems attempt to duplicate
stone age diets, in part by seeing what current stone
age cultures eat, in part by trying to figure it out
separately.

Quoted message said:

I would strongly warn anyone thinking of extreme restriction diets
to think again.

Adding the word "extreme" when such systems are not
is another sign what you tried wasn't the sort of
system I suggested.

Quoted message said:

In the short run they helped but they DEFINITELY made
me much worse in the longer run.

Consistant with your adding the word "extreme" in there,
check. Elimination systems aren't extreme.

Quoted message said:

For one thing the food sensitivities appear to be a
moving target!

This is quite true. I theorize that food intolerances
are in place from the gate but exposure makes the
reaction stronger and lack of exposure makes the reaction
weaker. I only have myself for data on this so it's a
pretty weak hypothesis at this point, though.

Over the years my reaction to wheat got stronger and
stronger. The difference in my health when I went
wheat-free was amazing. Even a spoon of gravy would
trigger symptoms at first. Now after years of avoiding
wheat a spoon of gravy has barely noticible symptoms
if I forget to scrape it off.

Quoted message said:

A strict diversified *rotational* diet can help however.

Alternative to an elimination system for people who
incorrectly impose extreme on an elimination system,
okay.

Quoted message said:

I dont do well nut, nor on too much roughage which appears to
irritate the gut lining.

Sounds like a good start at figuring out the source of
the problem.

Oh, ok. Thanks Aramanth.

So, basically, Shiphen, you're tired all the time, your muscles ache and
you have bouts of anxiety-related diarrhea?

Those are all psychosomatic. This does NOT mean the suffering,
discomfort andf symptoms arent real---they ARE. "psychosomatic" means,
"originating in the mind (psyche) and affecting the body (soma)".

In other words, basically, there's nothing physical wrong with
you---you're a self-absorbed neurotic whose constant worries about
yourself finally created real symptoms for you to focus upon.

The mind is amazing.

BTW "Myalgic encephalitis" is a meaningless term. The latin root, "myo"
refers to muscles. "Algia" means "pain". Hence, "Myalgia" means "pain
in the muscles". 'Encephal" refers to a part of the brain, while "itis"
always means, "inflamation of", "Encephalitis" means, "an inflamation
of the encephalus"
There are no muscles IN the brain....so, unless you have bacterial or
viral encephalitis which is somehow causing pain in the muscles, (which
would be the LEAST of your problems, if you have encephalitis) --there
aint no such animal.
Or maybe you meant "encephalomyelitis"? -- Inflamation of the brain and
spinal cord? Also caused byy bacterial or viral infections, sometimes
the result of a vaccination, and again, muscle pain would be the least
of your worries.

So, Im assuming you meant, "fibromyalgia" ( pain in the fibrous muscles,
or long striated muscles, aka skeletal muscles?

Doctors get so tired of the daily three or four neurotic patients with
vague, silly symptoms attached to NO real physical cause, they've made
up fancy names to make you feel better---AS IF you really have a
legitimate disease.
Hence, "Fibromyalgia" and "Irritable Bowel" and "CFS", LOL. They're a
jumble of latin terms describing the symptoms, that's all. In other
words, you say, "Doc...my muscles hurt!", he does scores of tests to
rule out real diseases that include muscle pain, finds none, and he
sagely replies, "Ah....fibromyalgia.....
"
You should see their faces light up when they get a NAME for their
"disease".
"My DOCTOR sez I got FIBROMYALGIA!.....so THERE!"

It's nicer to tell a patient, "you have fibromyalgia", than to say,
"there's nothing worng with you---you have pain in your muscles because
your free-floating anxiety about your eventual death OR the real
problems in your life this self-created disease keeps you from having to
face has created it." Then they shake their heads and grin at the staff
when you leave.

The cure is psychotherapy to uncover the REAL issues the physical
symptoms mask, anti-anxiety and anti-depression drugs.

Failing that, just accept the fact you're OK, physically....you just
worry too much.
HAVE FAITH, tho! ONE DAY you WIL have a REAL fatal disease!

Above all, tho----please tell it to somebody who gives a [censored], NOT a low
carb ng. How many OTHER ngs have you posted this pitiful "cry for help"
in, BTW?

I know talking about and getting others sucked in to talk about it, too
is a VERY satisfying thing...but really, there are plenty of ngs JUST
FOR nutjobs with home made diseases.

In the meantime, the ever-increasing number of folks like you have
served to get lots of young researches LOTS of BIG BUCK grants to study
the psychosomatic diseases and Im SURE they're all VERY grateful.....tho
not one bit closer to "proving" a damn thing.

LassChance

Re: Any cures for CFS/ME/IBS - esp. AFTER ALL ELSE HAS FAILED?!

Group: alt.support.diet.low-carb Date: Mon, Sep 5, 2005, 12:45am
(EDT+13:30) From: [email hidden] (Aramanth Dawe)
On Sun, 4 Sep 2005 10:41:30 -0400, [email hidden] (Lass
Chance_2) wrote:
Ok, I'll bite. What IS CFS/ME/IBS?
LassChance
CFS - Chronic Fatigue Syndrome
ME - Myalgic encephalitis (another name often used instead of CFS) IBS -
irritable bowel syndrome
Aramanth

I meant "strict" not "extreme"!

Ship
Shiperton Henethe

Quoted message said:

ship said:

Any cures for CFS/ME/IBS - esp. AFTER ALL ELSE HAS FAILED?!

Hi

I have been stalked by fatique (CFS/ME) for about 20 years.
I have tried almost everything you can think of!

I would love to hear from anyone else who has tried LOTS OF THINGS, and
who has finally found something that has ACTUALLY WORKED!

There's a guy, I think his site is dogtorj.com he has fibro, which has
gotten better with an exclusion diet. His diet, IIRC, is GARD, which
attempts to exclude or at least minimize, as far as possible, gluten and
casein, plus some other things. He believes if you can exclude enough of
the foods you are intolerant to for a long enough time, you can reverse the
damage to your immune system that he believes is at the root of auto immune
diseases like CFS, IBS, fibro, etc. He says some people need to be a lot
more stringent than others. The guy is a veterinarian so some of his site
gets a little technical.

--
No Husband Has Ever Been Shot While Doing The Dishes