General fitness, health and nutrition · Public discussion

What to expect when starting to wear a pump?

Started by Evon · · Last activity · 6 posts · 356 views

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General fitness, health and nutrition
Published
14 April 2004
Last activity
20 April 2004
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Evon
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  1. I may have to start using a pump. I asked the endo about
    what type of lifestyle changes to expect. He said what
    difference does it make, if I tell you need it - you need
    it. So could someone fill in the blanks for me?

    1. Do you wear it 24/7 - sleep with it?
    2. What if you want to swim?
    3. If you change activity level does the pump adjust
    automatically or do you manually change it? (Desk job to
    aerobic activity) Do you still count carbs/sugar or does
    the pump adjust accordingly?

  2. "Evon" <[email hidden]> wrote in
    :"]news:[email hidden]:

    Quoted message said:

    I may have to start using a pump. I asked the endo about
    what type of lifestyle changes to expect. He said what
    difference does it make, if I tell you need it - you need
    it. So could someone fill in the blanks for me?

    1. Do you wear it 24/7 - sleep with it?
    2. What if you want to swim?
    3. If you change activity level does the pump adjust
    automatically or do you manually change it? (Desk job
    to aerobic activity) Do you still count carbs/sugar or
    does the pump adjust accordingly?

    You wear it 24/7 and sleep with it. I wear it in a pouch
    safety pinned to shorts, some put it under the pillow, some
    in pajama pockets. You can disconnect, most infusion sets
    have a quick disconnect, for up to an hour with no problem.
    You may or may not have to dose for the lost basal insulin
    when you reconnect, experience will tell. This takes care of
    showering, hot tubbing, swimming, and the like for most.
    Several of the pumps are (claim) waterproofness for swimming
    long distance. The pump delivers a programmed basal rate
    that is adjustable in half or quarter hour increments
    depending on the brand, and bolus amounts as requested. It
    does not adjust anything automatically since it has no way
    to know what you are doing. (Some pumps will adjust
    automatically (if the feature is turned on) to account for
    insulin remaining from the last injection if you are trying
    to correct for a high blood glucose reading.) You have to
    decide how much insulin you need for a meal. Counting carbs
    is the standard way to do that. Some pumps will allow you to
    enter total carbs rather than units of insulin for a bolus
    and will divide by a insulin:carbohydrate ratio that you
    have entered.

    The pump is basically a $5000 syringe. It will deliver much
    more accurately than a $0.25 syringe what you tell it to
    deliver. By giving you a shot of rapid acting insulin every
    few minutes, it will allow you to tailor your basal insulin
    in ways that are very difficult or impossible with a long
    acting, or combination of long acting, insulins. But it will
    only do what you tell it to.

    --
    -------
    Charly Coughran [email hidden]

  3. Sounds like your endo could use a little shaping up. It
    makes a difference since you're the one using it and he
    should want to help fill in the blanks for you. Too many
    doctors with that attitude IMO, but there are many here and
    at the classes you'll take who can answer your questions in
    detail. Good luck.

    --
    Cheri
    Type 2, no meds for now.

    Evon wrote in message ...

    Quoted message said:

    I may have to start using a pump. I asked the endo about what type of
    lifestyle changes to expect. He said what difference does it make, if I


    tell

    Quoted message said:

    you need it - you need it. So could someone fill in the blanks for me?

  4. sounds like a huge disconnect between you and the endo. I'd
    consider changing endos, THEN looking into the pros/cons of
    using a pump.

    I'm a pump user since '96. It RADICALLY altered my
    life...for the better. For 18 years I was on MDI and in poor
    control due to the dawn phenom. I have nearly halved my
    A1c's, I get less stressed by severe hypos, I can sleep
    late, exercise on a few minutes notice, eat when I want
    instead of following a rigid schedule. My health is better;
    some complications resolved themselves.

    Yes, you wear the pump 24/7. I wear mine on my waistband
    like a pager. BEFORE I got it I was afraid that maybe I
    wouldn't like wearing it. The very FIRST day dispelled that
    myth! I've never regretted getting my pump (on my 3rd model,
    the Minimed 508) for ONE SECOND.

    You take it off to shower or swim. It can easily be left off
    for approx an hour. Under some circumstances you can stretch
    that to and hour and a half or two hours if your bg's remain
    stable due to exercise or previous boluses before
    disconnecting. The infusion sets don't hurt. I can't feel
    where mine is. I change mine every 3 days, sometimes in 2
    days. they are expensive but if insurance is paying for all
    or most, that's not an issue. What SHOULD be an issue is
    your health. if you NEED a pump for better control, then by
    all means look into it.

    I was super pro-active in getting a pump. I had to drop my
    endo of 10+ years in order to get it. He was against pumps
    and my health suffered for the delay. Within 6 weeks of
    seeing a new endo I received my first pump. Smartest thing I
    EVER did was to get a pump.

    There are a number of factors that should be evaluated by
    the endo in determining if you are a good candidate. So far,
    you fail, in my opinion. The reason is you have no knowledge
    or apparent interest in pumping. You've brought it up here
    because the endo mentioned it. That isn't good enough. YOU
    are the one who will be wearing it, adjusting it,
    understanding basals, boluses, carb counting, FREQUENT blood
    sugar testing. You need to be willing to go the extra mile
    to read everything about the pump you can lay your hands on.
    You need to read the owners manual several times and watch
    the instructional tape over and over. It needs to be second
    nature to you which buttons to push for which feature.

    In other words YOU must want to pump, more than the endo
    wants you to pump. It needs to be your burning desire that
    you obtain a pump as soon as you've selected the proper one.
    Sitting back and being dictated to by your doctor isn't
    going to do anyone any good.

    I again stress the need for you to be on the same wavelength
    as your doc. If the guy you are seeing really just dictates
    to you as you have indicated, you should switch docs. Talk
    to friends, relatives or another specialist whom you trust,
    to give you a referral.

    What sort of problems are you having that the endo says
    you should go on a pump, anyway? Most successful pumpers
    have bugged their docs to go on one, rather than the other
    way around.

    dave

    Evon said:

    I may have to start using a pump. I asked the endo about
    what type of lifestyle changes to expect. He said what
    difference does it make, if I tell you need it - you need
    it. So could someone fill in the blanks for me?

    1. Do you wear it 24/7 - sleep with it?
    2. What if you want to swim?
    3. If you change activity level does the pump adjust
    automatically or do you manually change it? (Desk job
    to aerobic activity) Do you still count carbs/sugar or
    does the pump adjust accordingly?

  5. I forgot to answer a couple of your questions.

    the pump doesn't know when your activity changes; you need
    to be mindful of programming it appropriately for the
    situation. There are "temporary" basals you can set for
    periods of extra activity or conversely for sick or
    sedentary periods; anything out of the norm. You count carbs
    and give yourself a bolus based on factors such as current
    bg, number of carbs, type of carbs (fast or slow), expected
    post meal activity level, etc. You still need to be the
    "brains" behind the pump.

    dave

    Evon said:

    I may have to start using a pump. I asked the endo about
    what type of lifestyle changes to expect. He said what
    difference does it make, if I tell you need it - you need
    it. So could someone fill in the blanks for me?

    1. Do you wear it 24/7 - sleep with it?
    2. What if you want to swim?
    3. If you change activity level does the pump adjust
    automatically or do you manually change it? (Desk job
    to aerobic activity) Do you still count carbs/sugar or
    does the pump adjust accordingly?

  6. On Wed, 14 Apr 2004 18:00:04 GMT, "Evon" <[email hidden]>

    Quoted message said:

    I may have to start using a pump. I asked the endo about
    what type of lifestyle changes to expect. He said what
    difference does it make, if I tell you need it - you need
    it. So could someone fill in the blanks for me?

    yes, first and foremost, you need a new endo. that [censored] poor
    attitude of his does not engender trust or show his
    competence.

    That being said, pumps are great for type 1s.

    Quoted message said:

    1. Do you wear it 24/7 - sleep with it?

    yes. but you change the set every 3 to 4 days. there is a
    quick disconnect that allows you unplug the tubing and plug
    it back in so

    Quoted message said:

    2. What if you want to swim?

    see above.

    Quoted message said:

    3. If you change activity level does the pump adjust
    automatically or do you manually change it? (Desk job to
    aerobic activity)

    you change it manually. AND you pre program it to match your
    normal activity level without exercise. some pumps allow you
    to program multiple profiles for different activities. you
    can also set temporary basal rates for changes in your
    routine that you did not program for.

    Quoted message said:

    Do you still count carbs/sugar or does the pump adjust
    accordingly?

    yes you count and make the bolus corrections yourself.

    There is a pump in development that will hopefully make the
    adjusts for you.

    goto insulin-pumpers.orginsulin-pumpers.org for the best info on all
    the various pumps on the market, good pumping tips, support
    from other pumpers, and upcoming pump developments,

    Mack©® Type 1 since 1975 alt-support-diabetes.orgalt-support-diabetes.org
    insulin-pumpers.orginsulin-pumpers.org

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