Kolur...my heart goes out to you. I have some inner ear issues caused by Meniere's Disease. Not the same issues as you describe, but I definitely understand the issues of trying to get properly diagnosed. I have had to learn the hard way that it can take many tries before you find somebody who can help you. I have also learned how to do a lot of my own research. While I am not a doctor, I have learned a hell of a lot about how to find information on my condition.
So I took the same approach with the information that you have supplied. I wonder if you have looked into the following:
emedicine.comtopic208.htmOpen ↗
Keep in mind though that it is never a good idea to self diagnose. In fact it can be pretty amazing how wrong a layman can be when reading (and reading into) this kind of stuff. My thought at including this is that perhaps you can do some further research on this specific condition and talk to the specialists in your area about it if you think that would help.
The other thing that worked really well for me...and pretty much made all the difference...was to be working with a bunch of phsycians (in my case at a big research and teaching hospital) who specialized in Otolaryngology. I found them by going to a really good ear, nose and throat guy, but what he did for me was only a shade of what I learned from them.
Hang in there. Hope this helps.