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Who could explain this?

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General fitness, health and nutrition
Published
22 February 2004
Last activity
3 March 2004
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Francispoon
Posts
28
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  1. While lurking around, I cannot help but notice that al.support.tinnitus is frequently cross posted.
    I have limited personal and professional experience with tinnitus. Yet, there is a newsgroup
    dedicated to the support of tinnitus patients. I understand tinnitus as a symptom of ASA overdose,
    etc., but cannot imagine what it is like to have such a severe case that it occupies enough time to
    post or read a newsgroup.

    Can someone educate me? What causes tinnitus so severe that emotional support is needed? What it is
    like to have tinnitus so badly?

    Please forgive me for having sucha poor understanding. Reading nursing texts and journals is one
    thing. Hearing from patients adds a whole new level of understanding.

    j

  2. On Mon, 1 Mar 2004 20:53:04 -0600, "Julianne" <[email hidden]>
    wrote (in part):

    Quoted message said:

    Can someone educate me? What causes tinnitus so severe that emotional support is needed?

    ..............

    Julianne, I think that for many tinnitus represents a very great loss
    - the loss of something so near and dear to you ... so much a part of you ... that you do not know
    how much it means to you until you lose
    it. Tinnitus is the loss of silence. Tinnitus sufferers - people with intrusive unrelenting
    tinnitus - often need ermotional support because they have lost their peace and quiet.

    .........

    Quoted message said:

    What it is like to have tinnitus so badly?

    ...........

    Everybody has a different story about what it's like to have tinnitus so badly.

    Here is one:

    www.tinn.com/clinics.html

    smn

  3. A relentless SCREECH in both ears, day and night, seven days a week, 365 days of the year. No
    letup, ever.

    Going to the doctor and being told that there is nothing that can be done.

    "Julianne" <[email hidden]> wrote in message news:oGS0c.4632$PY.2616@lakeread05...

    Quoted message said:

    While lurking around, I cannot help but notice that al.support.tinnitus is frequently cross
    posted. I have limited personal and professional experience with tinnitus. Yet, there is a
    newsgroup dedicated to the support of tinnitus patients. I understand tinnitus as a symptom of ASA
    overdose, etc., but cannot imagine what it is like to have such a severe case that it occupies
    enough time to post or read a newsgroup.

    Can someone educate me? What causes tinnitus so severe that emotional support is needed? What it
    is like to have tinnitus so badly?

    Please forgive me for having sucha poor understanding. Reading nursing


    texts

    Quoted message said:

    and journals is one thing. Hearing from patients adds a whole new level


    of

    Quoted message said:

    understanding.

    j

  4. On Mon, 1 Mar 2004 20:53:04 -0600, "Julianne" <[email hidden]>

    Quoted message said:

    While lurking around, I cannot help but notice that al.support.tinnitus is frequently cross posted.
    I have limited personal and professional experience with tinnitus. Yet, there is a newsgroup
    dedicated to the support of tinnitus patients. I understand tinnitus as a symptom of ASA overdose,
    etc., but cannot imagine what it is like to have such a severe case that it occupies enough time to
    post or read a newsgroup.

    Can someone educate me? What causes tinnitus so severe that emotional support is needed? What it is
    like to have tinnitus so badly?

    Please forgive me for having sucha poor understanding. Reading nursing texts and journals is one
    thing. Hearing from patients adds a whole new level of understanding.

    j


    My tinnitus is louder than the speech going on around me. It is a constant hum or drone that makes
    it difficult for me to understand speech on top of the problems I already have with profound hearing
    loss. There is no way for me to mask the sound with something else. When I am without a hearing aid,
    it is all that I hear. Wearing the hearing aid requires so much volume going into my ear that the
    tinnitus is aggravated more.

    It effects one's concentration and for some people makes it difficult to sleep which starts the
    vicious cycle of lack of rest which also aggravates tinnitus.

    Some of us get used to it by listening to the sound or can put it in the back of the mind when
    occupied with other things, but others find the sound so unnerving that it can't be put to the back
    of the mind and it can make you crazy if you let it. For these folks, the ng provides some way to
    keep you believing you are doing everything you can to make it go away.

    Terri

    pub219.ezboard.combtinnitusactivismandsupport

  5. On Tue, 02 Mar 2004 03:35:30 GMT, Stephen Nagler <[email hidden]>

    Quoted message said:

    On Mon, 1 Mar 2004 20:53:04 -0600, "Julianne" <[email hidden]> wrote (in part):

    Quoted message said:

    Can someone educate me? What causes tinnitus so severe that emotional support is needed?

    ..............

    Julianne, I think that for many tinnitus represents a very great loss
    - the loss of something so near and dear to you ... so much a part of you ... that you do not know
    how much it means to you until you lose
    it. Tinnitus is the loss of silence. Tinnitus sufferers - people with intrusive unrelenting
    tinnitus - often need ermotional support because they have lost their peace and quiet.

    .........


    Sheesh.

    Terri

    pub219.ezboard.combtinnitusactivismandsupport

  6. Thanks so much for your response. I received a couple of other responses but due to work, etc, I
    closed them out before I responded so I could take care of business. I regret that I didn't mark
    them as unread so I could respond in kind. All responses were appreciated! I feel I have gained
    great insight to this. A symptom of 'ringing in the ears' vs cannot begin to tell the story of
    people suffering from tinnitus.

    When I was much younger, I had a 'ringing' in my ears. I called the doc who insisted on checking me
    out and found nothing. His reassurance was all that I needed. I am understanding that the tinnitus
    patients who look to tinnitus newsgroups have a different variety of tinnitus.

    I hate to be so intrusive but I was genuinely curious. I sincerely appreciate everyone's response. I
    remember when I was in Nursing School. Most of the class agreed that they would hate to lost their
    ability to see more than anything. I, on the other hand, was protective of my hearing. I love music,
    etc. What you describe is tantamount to a complete loss of hearing.

    If there is anything you or anyone else cares to share that will help me understand this or know
    where to refer patients to, I would be forever grateful.

    j

    <[email hidden]> wrote in message "]news:[email hidden]...

    Quoted message said:
    Julianne said:

    While lurking around, I cannot help but notice that al.support.tinnitus


    is

    Quoted message said:
    Quoted message said:

    frequently cross posted. I have limited personal and professional experience with tinnitus. Yet,
    there is a newsgroup dedicated to the support of tinnitus patients. I understand tinnitus as a
    symptom of ASA overdose, etc., but cannot imagine what it is like to have such a severe case that
    it occupies enough time to post or read a newsgroup.

    Can someone educate me? What causes tinnitus so severe that emotional support is needed? What it
    is like to have tinnitus so badly?

    Please forgive me for having sucha poor understanding. Reading nursing


    texts

    Quoted message said:
    Quoted message said:

    and journals is one thing. Hearing from patients adds a whole new level


    of

    Quoted message said:
    Quoted message said:

    understanding.

    j


    My tinnitus is louder than the speech going on around me. It is a constant hum or drone that makes
    it difficult for me to understand speech on top of the problems I already have with profound
    hearing loss. There is no way for me to mask the sound with something else. When I am without a
    hearing aid, it is all that I hear. Wearing the hearing aid requires so much volume going into my
    ear that the tinnitus is aggravated more.

    It effects one's concentration and for some people makes it difficult to sleep which starts the
    vicious cycle of lack of rest which also aggravates tinnitus.

    Some of us get used to it by listening to the sound or can put it in the back of the mind when
    occupied with other things, but others find the sound so unnerving that it can't be put to the
    back of the mind and it can make you crazy if you let it. For these folks, the ng provides some
    way to keep you believing you are doing everything you can to make it go away.

    Terri

    pub219.ezboard.combtinnitusactivismandsupport

  7. To really appreciate your sight, try losing it for a few days, wear a completely opaque blindfold.
    You will be astounded by what you hear. Now imagine what would happen if your hearing was diminished
    by industrial noise and at the same time had tinnitus. No, I am not blind, but I did have occasion
    to lose the use of my eyes for short while many years ago. It was frightening to say the least.

    "Julianne" <[email hidden]> wrote in message news:hLd1c.6518$PY.1992@lakeread05...

    Quoted message said:

    Thanks so much for your response. I received a couple of other responses but due to work, etc, I
    closed them out before I responded so I could


    take

    Quoted message said:

    care of business. I regret that I didn't mark them as unread so I could respond in kind. All
    responses were appreciated! I feel I have gained great insight to this. A symptom of 'ringing in
    the ears' vs cannot begin to tell the story of people suffering from tinnitus.

    When I was much younger, I had a 'ringing' in my ears. I called the doc


    who

    Quoted message said:

    insisted on checking me out and found nothing. His reassurance was all


    that

    Quoted message said:

    I needed. I am understanding that the tinnitus patients who look to tinnitus newsgroups have a
    different variety of tinnitus.

    I hate to be so intrusive but I was genuinely curious. I sincerely appreciate everyone's response.
    I remember when I was in Nursing School. Most of the class agreed that they would hate to lost
    their ability to see more than anything. I, on the other hand, was protective of my hearing.


    I

    Quoted message said:

    love music, etc. What you describe is tantamount to a complete loss of hearing.

    If there is anything you or anyone else cares to share that will help me understand this or know
    where to refer patients to, I would be forever grateful.

    j

    <[email hidden]> wrote in message "]news:[email hidden]...

    Quoted message said:
    Julianne said:

    While lurking around, I cannot help but notice that al.support.tinnitus


    is

    Quoted message said:
    Quoted message said:

    frequently cross posted. I have limited personal and professional experience with tinnitus.
    Yet, there is a newsgroup dedicated to the support of tinnitus patients. I understand tinnitus
    as a symptom of


    ASA

    Quoted message said:
    Quoted message said:
    Quoted message said:

    overdose, etc., but cannot imagine what it is like to have such a


    severe

    Quoted message said:
    Quoted message said:
    Quoted message said:

    case that it occupies enough time to post or read a newsgroup.

    Can someone educate me? What causes tinnitus so severe that emotional support is needed? What
    it is like to have tinnitus so badly?

    Please forgive me for having sucha poor understanding. Reading nursing


    texts

    Quoted message said:
    Quoted message said:

    and journals is one thing. Hearing from patients adds a whole new


    level

    Quoted message said:

    of

    Quoted message said:
    Quoted message said:

    understanding.

    j


    My tinnitus is louder than the speech going on around me. It is a constant hum or drone that
    makes it difficult for me to understand speech on top of the problems I already have with
    profound hearing loss. There is no way for me to mask the sound with something else. When I am
    without a hearing aid, it is all that I hear. Wearing the hearing aid requires so much volume
    going into my ear that the tinnitus is aggravated more.

    It effects one's concentration and for some people makes it difficult to sleep which starts the
    vicious cycle of lack of rest which also aggravates tinnitus.

    Some of us get used to it by listening to the sound or can put it in the back of the mind when
    occupied with other things, but others find the sound so unnerving that it can't be put to the
    back of the mind and it can make you crazy if you let it. For these folks, the ng provides some
    way to keep you believing you are doing everything you can to make it go away.

    Terri

    pub219.ezboard.combtinnitusactivismandsupport

  8. "Julianne" <[email hidden]> wrote in message news:<oGS0c.4632$PY.2616@lakeread05>...

    Quoted message said:

    While lurking around, I cannot help but notice that al.support.tinnitus is frequently cross
    posted. I have limited personal and professional experience with tinnitus. Yet, there is a
    newsgroup dedicated to the support of tinnitus patients. I understand tinnitus as a symptom of ASA
    overdose, etc., but cannot imagine what it is like to have such a severe case that it occupies
    enough time to post or read a newsgroup.

    Can someone educate me? What causes tinnitus so severe that emotional support is needed? What it
    is like to have tinnitus so badly?

    For me, it means the loss of cheerfulness and economic productivity. Both hurt!

    FP
    ====================================

    Quoted message said:


    Please forgive me for having sucha poor understanding. Reading nursing texts and journals is one
    thing. Hearing from patients adds a whole new level of understanding.

    j

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